About the FOP Registry

The FOP Registry is the largest and most detailed database of medical information about FOP and those who are living with the condition. The best part about the FOP Registry is that it is growing every day. That’s because people from around the world living with FOP, and their doctors, are contributing to it. And that means that the understanding of this very rare condition is growing all the time. The FOP Registry was started in 2015 and is open to anyone living with FOP.

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